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Taking a "care pathway/whole systems" approach to equality diversity inclusion (EDI) in organ donation and transplantation in relation to the needs of "ethnic/racial/migrant" minority communities: a statement and a call for action

  • Alessandra Agnese Grossi
    ,
  • Gurch Randhawa
    ,
  • Nichon Esther Jansen
    ,
  • David Paredes-Zapata
  • University of Insubria
    ,
  • Dutch Transplant Foundation
    ,
  • University of Barcelona
Research Output: Contribution to journal Review article Peer-review

Open access

Sustainable Development Goals

  • SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well
  • SDG 10 - Reduced Inequalities
    SDG 10 Reduced Inequalities

Abstract

International evidence shows variation in organ donation and transplantation (ODT) based upon a range of patient characteristics. What is less well understood is the impact of patient "ethnicity/race/immigration background," as these terms are defined and intended differently across countries. We also know that these characteristics do not operate in isolation but intersect with a range of factors. In this paper, we propose a framework that seeks to clarify the definition of the key terms "ethnicity/race/migrant" and to review how these communities are operationalized across European studies about inequities in ODT. Further, patients and the public wish to see Equality Diversity Inclusion (EDI) approaches in their everyday lives, not just in relation to ODT. We propose a 'care pathway/whole-systems' approach to ODT encompassing culturally competent public health interventions for a) the prevention and management of chronic diseases, b) improvements in public engagement for the promotion of the culture of ODT and enhancements in end-of-life care, through to c) enhanced likelihood of successful transplant among migrant/ethnic minority communities. Our framework recognizes that if we truly wish to take an EDI approach to ODT, we need to adopt a more social, human and holistic approach to examining questions around patient ethnicity.

Publication Information

Output type

Research Output: Contribution to journal Review article Peer-review

Original language

English

Article number

11310

Pages from-to (Number of pages)

Pages 11310

Journal (Volume, Issue Number)

Transplant International (Volume 36)

Publication milestones

  • Accepted/In press - 13/07/2023
  • Published - 31/07/2023

Publication status

Published - 31/07/2023

ISSN

0934-0874

External Publication IDs

  • handle.net: 10547/625975
  • Scopus: 85168372989
  • PubMed: 37600748

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