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Patient empowerment for cancer patients through a novel ICT infrastructure

  • Haridimos Kondylakis
    ,
  • Anca Bucur
    ,
  • Chiara Crico
    ,
  • Feng Dong
    ,
  • Norbert Graf
    ,
  • Stefan Hoffman
  • Foundation for Research and Technology-Hellas
    ,
  • Koninklijke Philips N.V.
    ,
  • IRCCS Istituto Europeo di Oncologia - Milano
    ,
  • Saarland University
    ,
  • Promotion Software GmbH
    ,
  • Fraunhofer Institute for Biomedical Engineering
Research Output: Contribution to journal Article Peer-review

Sustainable Development Goals

  • SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well

Abstract

As a result of recent advances in cancer research and “precision medicine” approaches, i.e. the idea of treating each patient with the right drug at the right time, more and more cancer patients are being cured, or might have to cope with a life with cancer. For many people, cancer survival today means living with a complex and chronic condition. Surviving and living with or beyond cancer requires the long-term management of the disease, leading to a significant need for active rehabilitation of the patients. In this paper, we present a novel methodology employed in the iManageCancer project for cancer patient empowerment in which personal health systems, serious games, psychoemotional monitoring and other novel decision-support tools are combined into an integrated patient empowerment platform. We present in detail the ICT infrastructure developed and our evaluation with the involvement of cancer patients on two sites, a large-scale pilot for adults and a small-scale test for children. The evaluation showed mixed evidences on the improvement of patient empowerment, while ability to cope with cancer, including improvement in mood and resilience to cancer, increased for the participants of the adults′ pilot.

Publication Information

Output type

Research Output: Contribution to journal Article Peer-review

Original language

English

Journal (Volume, Issue Number)

Journal of Biomedical Informatics (Volume 101)

Publication milestones

  • Accepted/In press - 21/11/2019
  • Published - 06/12/2019

Publication status

Published - 06/12/2019

ISSN

1532-0464

External Publication IDs

  • handle.net: 10547/623881
  • Scopus: 85076247850

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