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Bereaved donor families' experiences of organ and tissue donation, and perceived influences on their decision making

  • Magi Sque
    ,
  • Wendy Walker
    ,
  • Tracy Long-Sutehall
    ,
  • Myfanwy Morgan
    ,
  • Gurch Randhawa
    ,
  • Amanda Rodney
  • Royal Wolverhampton Hospitals NHS Trust
    ,
  • University of Wolverhampton
    ,
  • University of Southampton
    ,
  • King's College London
Research Output: Contribution to journal Article Peer-review

Open access

Sustainable Development Goals

  • SDG 4 - Quality Education
    SDG 4 Quality Education

Abstract

To elicit bereaved families' experiences of organ and tissue donation. A specific objective was to determine families' perceptions of how their experiences influenced donation decision-making. Retrospective, qualitative interviews were undertaken with 43 participants of 31 donor families to generate rich, informative data. Participant recruitment was via 10 National Health Service Trusts, representative of five regional organ donation services in the UK. Twelve families agreed to DBD, 18 agreed to DCD, 1 unknown. Participants' responses were contextualised using a temporal framework of 'The Past', which represented families' prior knowledge, experience, attitudes, beliefs, and intentions toward organ donation; 'The Present', which incorporated the moment in time when families experienced the potential for donation; and 'The Future', which corresponded to expectations and outcomes arising from the donation decision. Temporally interwoven experiences appeared to influence families' decisions to donate the organs of their deceased relative for transplantation. The influence of temporality on donation-decision making is worthy of consideration in the planning of future education, policy, practice, and research for improved rates of family consent to donation. PURPOSE METHODS RESULTS CONCLUSIONS

Publication Information

Output type

Research Output: Contribution to journal Article Peer-review

Original language

English

Pages from-to (Number of pages)

Pages 82-89

Journal (Volume, Issue Number)

Journal of Critical Care (Volume 45)

Publication milestones

  • Published - 16/01/2018

Publication status

Published - 16/01/2018

ISSN

0883-9441

External Publication IDs

  • handle.net: 10547/623806
  • Scopus: 85044368015

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