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A multi-centre qualitative study exploring the experiences of UK South Asian and white diabetic patients referred for renal care

  • Emma Wilkinson
    ,
  • Gurch Randhawa
    ,
  • John Feehally
    ,
  • Ken Farrington
    ,
  • Roger Greenwood
    ,
  • Peter Choi
  • Leicester General Hospital
    ,
  • North Herts NHS Trust
    ,
  • Imperial College Healthcare NHS Trust
Research Output: Contribution to journal Article Peer-review

Open access

Sustainable Development Goals

  • SDG 3 - Good Health and Well-being
    SDG 3 Good Health and Well

Abstract

Background An exploration of renal complications of diabetes from the patient perspective is important for developing quality care through the diabetic renal disease care pathway. Methods Newly referred South Asian and White diabetic renal patients over 16 years were recruited from nephrology outpatient clinics in three UK centres - Luton, West London and Leicester – and their experiences of the diabetes and renal care recorded. A semi-structured qualitative interview was conducted with 48 patients. Interview transcripts were analysed thematically and comparisons made between the White and South Asian groups. Results 23 South Asian patients and 25 White patients were interviewed. Patient experience of diabetes ranged from a few months to 35 years with a mean time since diagnosis of 12.1 years and 17.1 years for the South Asian and White patients respectively. Confusion emerged as a response to referral shared by both groups. This sense of confusion was associated with reported lack of information at the time of referral, but also before referral. Language barriers exacerbated confusion for South Asian patients. Conclusions The diabetic renal patients who have been referred for specialist renal care and found the referral process confusing have poor of awareness of kidney complications of diabetes. Healthcare providers should be more aware of the ongoing information needs of long term diabetics as well as the context of any information exchange including language barriers.

Publication Information

Output type

Research Output: Contribution to journal Article Peer-review

Original language

English

Journal (Volume, Issue Number)

BMC Nephrology (Volume 13, Issue 157)

Publication milestones

  • Published - 01/01/2012

Publication status

Published - 01/01/2012

External Publication IDs

  • handle.net: 10547/593389
  • Scopus: 84869875846

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